Keynote Speaker: Patricia Kosseim Senior General Counsel and Director General
Legal Services, Policy, Research and Technology Analysis Branch
Office of the Privacy Commissioner of Canada (OPC)
Patricia provides strategic legal and policy advice on a broad range of privacy issues, oversees privacy research on emerging information technologies, and represents the Privacy Commissioner before courts and Parliamentary Committees. Patricia has also worked at Genome Canada and the Canadian Institutes of Health Research where she developed and led national strategies to address ethical, legal and social implications of science and technology. Prior to moving to Ottawa, Patricia practiced as a lawyer in Montreal for over six years with a large national law firm. Patricia graduated in Business and Law from McGill University in Montreal and holds a Masters’ degree in Medical Law and Ethics from the King’s College London, UK. Called to the Barreau du Québec in 1993, she has published and presented extensively on matters of health law, privacy and ethics. She is a member of the Board of Governors of The Ottawa Hospital and teaches part-time at the Common law section of the Faculty of Law, University of Ottawa.
Keynote Speaker: Dr. Eloïse Gratton, Partner, Borden Ladner Gervais LLP
Eloïse advises clients from various industries on legal and privacy requirements of new projects, products, practices, programs and technologies, providing strategic national and international privacy and anti-spam compliance advice and assisting them in crisis management situations (privacy class action lawsuits, security breaches and privacy commissioners’ investigations). She is often featured or interviewed in the news as an IT law and privacy expert (Wall Street Journal, Fast Company, Radio-Canada, CTV, TVA, V, CBC, Les Affaires, National Post, Le Devoir, La presse, Journal de Montreal, the Gazette, etc.). She is the author of the textbook “Understanding Personal Information: Managing Privacy Risks” (LexisNexis, 2013), which was quoted by the Supreme Court of Canada in the recent important privacy case Alberta (Information and Privacy Commissioner) v. UFCW, Local 401. She also co-authored the 2013 edition of “Privacy in the Workplace” (CCH) and her 2003 textbook “Internet and Wireless Privacy: Legal Guide to Global Business Practices” (CCH) was also quoted by the Supreme Court of Canada in the Tariff 22 decision. She has been featured in the LEXPERT magazine as a leading Canadian privacy lawyer in fall 2013. Eloïse is a regular speaker at privacy and technology events and has testified or presented before the Standing Committee on Access to Information, Privacy and Ethics, House of Commons. She teaches privacy law (U of M). She holds a doctorate degree in privacy law (University of Paris II and U of M).
Panel 1: Health Privacy
Amy Conroy, Doctoral Student, University of Ottawa
Amy is a PhD student at the University of Ottawa and is working under the joint supervision of Professor Elizabeth Judge and Professor Teresa Scassa. Her previous graduate and undergraduate background is in Law, Economics, and Psychology. Her doctoral research considers the emerging issue of familial searching of DNA in the criminal context from a Critical Race Theory perspective. The thesis examines the equality issues in particular along with the potential implications for the right to privacy and to life, liberty, and security of the person. Other research and teaching interests include healthcare law and policy, genetic privacy, and Indigenous rights.
Kelly Grindrod, Assistant Professor, University of Waterloo School of Pharmacy
Kelly Grindrod, BScPharm, PharmD, MSc is a pharmacist and researcher. Her work focuses on the role digital technologies can play in helping people understand medications. Read more about her research at kellygrindrod.com.
Yann Joly, Research Director, Centre of Genomics and Policies, McGill University
Yann Joly, Ph.D. (DCL), Ad.E. is a Lawyer Emeritus from the Quebec Bar and the Research Director of the Centre of Genomics and Policies(CGP). He is an Associate Professor at the Faculty of Medicine, Department of Human Genetics and, at the Bioethics Unit, at McGill University. He is a research fellow from the Fonds de recherche du Québec- Santé (FRQS) and an associate researcher at the Centre de recherche en droit public (Université de Montréal). He also works as an ethics and legal consultant in the private sector. He has served as a legal advisor on several ethics committees in the public and private sectors. He received the Quebec Bar Award of Merit (Innovation) for his work on the right to privacy in the biomedical field.
Derek J. Jones, McGill Centre for Human Rights and Legal Pluralism
Derek J. Jones is a health lawyer, lecturer and scholar. A graduate of Harvard and Yale Universities, he works at the interface of human rights, health sciences and ethics. At McGill, he is member of the Centre for Human Rights & Legal Pluralism, a member of McGill’s Research Group on Health and Law, and has taught health law in bioethics, psychiatry and law, AIDS law, comparative medical law, nursing law and ethics. He has collaborated as senior advisor to governmental, professional, university, and international bodies, like Justice Canada, Health Canada, the Canadian Institutes of Health, the Law Reform Commission of Canada, French Government, UNESCO. As founding Director of the Government of Canada Interagency Advisory Panel and Secretariat on Research Ethics, he played a leading role in the revision of Canada’s national standards for the ethical conduct research involving humans. His studies and reports have focussed on ethico-legal and medical riddles before modern society, such as the right to health; genetic testing and human rights; AIDS discrimination; human research and international privacy laws; brain death; biotech ethics, confidentiality; organ sales tissue/ procurement ethics; medically assisted procreation. Current research projects include mental health privacy and equality in the workplace; human rights and research ethics; conflicts of interest; disability law.
Colleen Sheppard, Director, McGill Centre for Human Rights and Legal Pluralism, Professor, Faculty of Law, McGill University
Colleen Sheppard is the Director of the McGill Centre for Human Rights and Legal Pluralism and a Professor at the Faculty of Law, McGill University. She has an honours B.A. and LL.B. from the University of Toronto, and an LL.M. from Harvard University. Following her legal studies, she clerked for Chief Justice Dickson at the Supreme Court of Canada. Her teaching and research focus on human rights law, equality rights, employment equity, comparative constitutional law and feminist legal theory. In addition to her teaching and research, she has been active in public interest work. She served as a Commissioner on the Quebec Human Rights and Youth Rights Commission from 1991-1996 and has been a consultant with the federal Department of Justice, the National Judicial Institute, the Canadian Human Rights Commission, the Ontario Métis Aboriginal Association and the International Labour Organization. Recent books include: Human Rights and Diverse Societies with François Crépeau) (2013); Inclusive Equality: The Relational Dimensions of Systemic Discrimination in Canada (2010).
Panel 2: Privacy and Security in a Globalized World
Luk Arbuckle, Director of Analytics, Privacy Analytics Inc.
Luk Arbuckle is co-author of the book Anonymizing Health Data: Case Studies and Methods to Get You Started (O'Reilly 2013). The book covers several de-identification projects he’s worked on, such as the $3 million Heritage Health Prize, the Cajun Code Fest hackathon, the American Society of Clinical Oncology's pilot project for CancerLinQ, and Mount Sinai's World Trade Center disaster registry. He has a master's degree in applied mathematics, and another in applied statistics. Luk joined the Electronic Health Information Laboratory (EHIL) at the CHEO Research Institute in 2010 doing research devoted to facilitating the sharing of electronic health information for secondary purposes while protecting patient privacy. Luk continues to do research in the field re-identification risk measurement and de-identification methods through his affiliation with EHIL, and leads a team at Privacy Analytics that assesses re-identification risk in data sets with personal information. He works closely with Khaled El Emam, Canada Research Chair in Electronic Health Information, an expert in statistical de-identification.
David T. S. Fraser, Partner, McInnes Cooper
David is well-known as one of Canada’s leading internet, technology and privacy lawyers. He regularly advises a range of clients – from start-ups to Fortune 100 companies – on all aspects of technology and privacy laws. He advises private and public sector clients to implement compliance programs for Canadian privacy legislation. David regularly provides opinions on privacy laws for both Canadian and international clients and is a frequently invited speaker on this topic. He also acts for complainants and respondents in matters referred to the Office of the Privacy Commissioner and is the author of the popular Canadian Privacy Law Blog (blog.privacylawyer.ca). David is widely recognized as one of Canada’s foremost authorities on privacy law and other legal issues associated with cloud computing. He regularly advises vendors and customers in connection with implementing cloud computing projects, in both the public and private sectors. David is particularly known for his ability to cut through the seemingly intractable issues related to cross-border data flows and law enforcement/national security access to customer data.
Michael Geist, Canada Research Chair in Internet and E-commerce Law, University of Ottawa
Dr. Michael Geist is a law professor at the University of Ottawa where he holds the Canada Research Chair in Internet and E-commerce Law. He has obtained a Bachelor of Laws (LL.B.) degree from Osgoode Hall Law School in Toronto, Master of Laws (LL.M.) degrees from Cambridge University in the UK and Columbia Law School in New York, and a Doctorate in Law (J.S.D.) from Columbia Law School. Dr. Geist is a syndicated columnist on technology law issues with his regular column appearing in the Toronto Star and the Ottawa Citizen. Dr. Geist is the editor of several copyright books including The Copyright Pentalogy: How the Supreme Court of Canada Shook the Foundations of Canadian Copyright Law (2013, University of Ottawa Press), From "Radical Extremism" to "Balanced Copyright": Canadian Copyright and the Digital Agenda (2010, Irwin Law) and In the Public Interest: The Future of Canadian Copyright Law (2005, Irwin Law). He is also the editor of several monthly technology law publications, and the author of a popular blog on Internet and intellectual property law issues. Dr. Geist has received numerous awards for his work including the Kroeger Award for Policy Leadership and the Public Knowledge IP3 Award in 2010, the Les Fowlie Award for Intellectual Freedom from the Ontario Library Association in 2009, the Electronic Frontier Foundation’s Pioneer Award in 2008, Canarie’s IWAY Public Leadership Award for his contribution to the development of the Internet in Canada and he was named one of Canada’s Top 40 Under 40 in 2003. In 2010, Managing Intellectual Property named him on the 50 most influential people on intellectual property in the world and Canadian Lawyer named him one of the 25 most influential lawyers in Canada in 2011, 2012 and 2013.
Panel 3: Privacy after Death
Julia Creet, Associate Professor of English, York University
B.A., History, University of Victoria, M.A. History and Philosophy of Education, University of Toronto, Ph.D., History of Consciousness, UC Santa Cruz.
Julia Creet is an Associate Professor of English at York University in Toronto. She teaches memory studies, literary nonfiction and satire. She is the co-editor (with Andreas Kitzmann) of Memory and Migration—multidisciplinary approaches to memory studies (University of Toronto Press 2011) and co-editor (with Sara Horowitz and Amira Dan) of H.G. Adler: Life, Literature, Legacy (Forthcoming. Northwestern UP, 2015). She is also the director and producer of “MUM: A Story of Silence” (2008), a documentary about a Holocaust survivor who tried to forget, and “Need to Know: Ancestry and the Business of Family” (2015) a feature-length documentary about the industry behind the “innate” need to know one’s past.
Mistrale Goudreau, Full Professor, Faculty of Law (Civil Law Section), University of Ottawa
Mistrale Goudreau holds an LL.L. from the Université de Montréal (Faculté de Droit, Montréal, 1979) and an LL.M. in Commercial Law from the London School of Economics and Political Science, (Department of Law, London, England, 1981). She has been a member of the Quebec Bar since 1981 and is full professor at the Civil Law Section of the University of Ottawa where she has been teaching since 1982. Her teaching responsibilities deal with intellectual property, law and technology and statutory interpretation. She has also been a lecturer and visiting professor at the Faculty of Law of the University of Montréal, at the Faculty of Law of the University of Nantes (France), and at the Canadian Foreign Service Institute (CFSI) in Ottawa, as well as a research fellow at the Max-Planck-Institut für ausländisches und internationales Patent-, Urheber- und Wettbewerbsrecht (Munich, Germany) and consultant for the Government of Canada. In the past, Mistrale Goudreau has acted as the executive director of the Council of Canadian Law Deans and as the assistant dean for clinical and applied teaching and the vice-dean of the Civil Law Section of the University of Ottawa. She is a member of the executive committee of the editorial board of Les Cahiers de propriété intellectuelle. She has published numerous articles on copyright, unfair competition, legislative drafting and legal theory. She authored a book entitled International Encyclopaedia of Laws: Intellectual Property Canada, (Alphen aan den Rijn (Netherland), Kluwer Law International, 2013).
Margaret Ann Wilkinson, Full Professor, Faculty of Law, Western University
Dr. Margaret Ann Wilkinson trained as both a lawyer and a librarian before writing her PhD dissertation on “The Impact of the Ontario Freedom of Information and Protection of Privacy Act 1987 upon affected organizations.” Now Professor of Law at Western University, she has been awarded the Ontario Library Association Les Fowlie Intellectual Freedom Award. She is the author of Genealogy and the Law in Canada, co-published by the Ontario Genealogical Society and Dundurn Press in 2010 and recently updated through an article in the OGS Families magazine.
Panel 4: Privacy Digital Skills and Education for Children and Youth
Matthew Johnson, Director of Education, MediaSmarts
Matthew Johnson is the Director of Education for MediaSmarts, Canada’s center for digital and media literacy. He is the designer of the comprehensive digital literacy tutorials Passport to the Internet (Grades 4-8) and MyWorld (Grades 9-12). He has contributed blogs and articles to websites and magazines around the world as well as presenting MediaSmarts’ materials on topics such as copyright, cyberbullying, body image and online hate to parents, journalists, academics and government bodies in Canada and around the world. Matthew is also an educator with nearly ten years’ experience teaching media education, film-making, English and special education among other subjects. A collection of his short fiction, Irregular Verbs and Other Stories, was published in June of 2014.
Colin McKay, Head of Public Policy and Government Relations for Google in Canada
Colin is the Head of Public Policy and Government Relations for Google in Canada. Before joining Google, he worked as the Director of Research and Public Education at the Office of the Privacy Commissioner of Canada, where his team researched the impact of the digital economy on personal privacy and then built tools to help individuals understand their privacy rights. Colin is a member of the Government of Canada Advisory Panel on Open Government, and is a member of the board at Media Smarts, a not-for-profit organization that provides youth with critical thinking skills to engage with media as active and informed digital citizens.
Karen Louise Smith, Mitacs Elevate Post-doctoral Research Fellow, University of Toronto & Mozilla
Dr. Karen Louise Smith is currently a Mitacs Elevate Postdoctoral Fellow with Mozilla and the University of Toronto. The tensions between openness, privacy and participation in a technologically mediated culture are central to her research. Dr. Smith's current work explores Hive Toronto, a Mozilla stewarded digital literacy network, and open educational infrastructures. Through the 2014-2015 Office of the Privacy Commissioner of Canada's Contributions Program, Dr. Smith co-designed prototypes of open privacy badges with teens from the Toronto area.